Posts Tagged 'remission'

Remission for Crohn’s? WT….

So I am reading my latest issue of “Science News” when I come across an article titled “Crohn’s drug shows promise”. Needless to say, I read that with skepticism and some hope, seeing as how Humira and Remicade have both been total pieces of shit when it comes to my Crohn’s and Humira ended up giving me kidney cancer and I had to have a partial nephrectomy.

Anyway, this new drug, mongersen, supposedly put over two-thirds of its trial participants into remission for over six months. if that is true, how do i sign up for the clinical trial? I am so very tired of Crohn’s and all of its side effects (namely the severe diarrhea). It has come to the point that i can’t go anywhere without making sure that there is a bathroom wherever it is i am going. this drug works on TNF-alpha differently than humira or remicade. again, neither one of those drugs worked on my TNF-alpha in the first place, so anything is better than those two. i am emailing my GI to see what he says about this compound.

So Much for Remission (9/16)…

Ah, well, it was fun while it lasted. I am having horrible pain recently and am sure it is because i am decreasing my Cipro and Prednisone amounts. My penis is really hurting and it only started after decreasing those two drugs. I am going to go to my doctor tomorrow to tell him about it and hope he doesn’t say it is something new or worse than before.